July 23, 2008

  • Smiling Eyes!

    When I went to visit little Craig earlier this week I was met with smiling eyes!  Roxane and Rick knew I was on my way, so they didn't tell me much...they wanted me to be surprised by how alert and good Craig is doing thus far.  Oh what a blessing it was for him to see me and try to smile despite the tubes in his mouth!

    Craig CMH 0708 028 Craig doing his best to smile!

    He's now on a IPV ventilator (one they can add his breathing treatments to directly).  And another IV machine was gone off the pole! YEAH! He's now getting fed via a NG tube (goes down through the nose). 

    He was able to give me high fives, thumbs up, and blink to answer yes/no questions (or shake his head).  He cried when I told him I had to go...so I stayed a bit longer!! He was also able to tell me how much 2+2 and 2-1 was with his fingers...but then didn't want to do anymore!  I can't blame him!  He also played Candyland with Mom a couples of time...and even beat her once!!

    He still has that awful rash on his back.  Turns out it's a mold (the doctor says like you find on bread) called Aspergillus fumigatus, which would be really bad if it was in his lungs, but it's not, thank God!  While I was there he was able to roll from his back to his side so the nurses could wash it and then put some salve on it.

    He's still really weak and still has a long way to go...but considering where we were 2 weekends ago...we have SOOOO MUCH to be thankful for!

    I asked Craig if he wanted to go out for ice cream or pizza with Miss Libby when he got home from the hospital...over the tubes, he quietly whispered, "Pizza!!"  I told him that I wouldn't eat another piece of pizza until he came home! 

    Craig CMH 0708 026

    Keep praying Craig will continue to lose more and more tubes, medicines AND especially get rid of that yucky rash!  (It even hurts!)

Comments (5)

  • Suggest to Craig's family that they have their home tested for mold (especially in Craig's room). Aspergillus fumigatus is one nasty bug If it's airborne in your home. It's something they would definitely want to have professionally remediated before they bring Craig home. And with Craig's condition, I would think their homeowner's insurance and/or health insurance company would cover the testing and remediation.

  • @Petereit - I will do so.  They live in an apartment...so it may be a bit tricker.  But the med team really feels he got it while in the hospital.  But, still a VERY good idea to check the home.

  • Good news/bad news: The good news is that if there is unhealthy levels of mold, the apartment complex is on the hook to pay for remediation. The bad news is that they'll more than likely have to be sued to get them to do it. But if Craig is on private health insurance, their insurance company would probably be happy to take the apartment complex to court to try to recoup all the money they're dolling out for Craig's hospital stay -- or at least to try to prevent it from happening again.

  • It's nice to see the little man.... smiling.
    Prayers are still going to the throne room.

    Peace to you,
    Take Care.

  • Praise God for those beautiful, alert eyes.  Still praying.  I am thankful Craig and his parents have you in their lives.
    Blessings!

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